I was thrilled to be invited by The Guthy-Jackson Charitable Foundation to help out at the Consortium for MS Centers this year. The Consortium, which was celebrating their 25th anniversary, was held in Montreal, Canada. My task: attend the conference, work the trade booth, and create awareness about NMO (NeuroMyelitis Optica). A quick 40 minute flight from Toronto, this was a rewarding experience.
2 worthwhile things I learned:
- I met a Physical Therapist who worked with an NMO patient suffering from frequent and crippling spasms (I remember them – they were horrible!). Their treatment plan consisted of Botox injections into the heels of feet to interrupt the signals triggering the spasms.
- “Patient Activation” was a term a MS patient used when she described managing her disease. We aren’t always motivated to do something, like workout, but if we just do it (patient activation) we’ll find that within a few moments of the activity we find the motivation and can accomplish the task.