Patient Day 2011

THANK YOU THANK YOU THANK YOU to the Guthy-Jackson Charitable Foundation for arranging yet another successful Patient Day.  Thank you so much for having us and always being in our corner.  Patient Day was a great chance to re-educate and receive new information on Neuromyelitis Optica (NMO).  More than ever, I’m confident that they’ll find a cure one day.  Some exciting stuff I gathered from the event:

  • An aquaporin map treatment is in the works to creat good antibodies.  A paper was recently released by Dr. Alan Verkman.
  • Talk to your doctors about the flu shot but in general, the benefits usually outweigh the risks for NMO patients.
  • Be more active and wash your hands!
  • Remember to get regular check ups like the rest of the population (ie. Melanoma could be a side effect of long term use of Cellcept).
My favourite break out session was definitely the Nutrition and Diet.  Led by John Pierre (who is Ellen Degeneres nutrition guru), he made a very effective argument towards a plant based diet.  Having tried a vegetarian lifestyle for a couple of months this year, I did see results and did feel much better.  I came home energized to try it again and so far in the last couple of days I’ve lost a few pounds and have regained some of my energy.  Although, I did try his gluten free, sugar free blueberry muffin recipe and I’m honestly not a huge fan.

Here are a few highlights from our trip:

 

Jenna

One Comment

  1. Grace

    Hello NMO Diaries Ladies! Erin, it was wonderful to see you and to check up on that little cupcake. 🙂 Jenna and Christine, I’m so sorry if I missed you—things were moving so fast that I almost can’t remember who I met and who I didn’t.

    I loved the breakout sessions, particularly the one about treatment and prognosis, and the one about managing symptoms. Very informative.

    Can’t wait to see you guys next year!

    Gracie

    Comment by Grace on November 16, 2011 at 10:13 pm

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