Now’s the time of year when we focus on a fresh start and many create one or more resolutions. Popular resolutions include losing weight, getting a new job and looking for that special someone. Yet, as a Neuromyelitis Optica (NMO) patient, my resolutions are quite different. In fact, they more resemble hopes or wishes because they aren’t really anything I can control.
1. This year I’m hoping to spend less time at the hospital. I’m extremely grateful for the team of doctors who monitor my health but it feels like I’m at a check up every week. I know hospitals are a place to get better but every time I’m in one I can’t help but get a little depressed. My new normal is living with all the NMO symptoms every day but going for check ups always reminds me how tough this disease really is.
2. This year I’m also hoping for less vampire time. That’s what I call getting blood work done. I hate needles and despite popular belief, getting stuck with a needle never gets easier.
3. Exercise more. This resolution I have some control over but there are some days that my NMO really kicks me in the butt. The fatigue takes over and my limbs feel like lead and there’s really nothing I can do to make that better other than get some rest. I know the exercise is suppose to help with the fatigue and pain management but that’s easier said than done.
For New Year’s Eve we had a few friends over and made a feast including lobster tails, steak and homemade guacamole and chips. We strapped a GoPro (a small camera) to my dog who is always the social extrovert. For your viewing enjoyment, check out the video below.