It’s no secret that breastfeeding provides tons of benefits to one’s child but it’s not always possible for all new Moms. I’m indifferent to breastfeeding but in my personal opinion, the pros outweigh the cons so it has always been my hope to provide Sophie with at least 6 months of exclusive breast milk.
Throw in Neuromyelitis Optica into the mix.
My team of doctors have always provided me with excellent care but up until this moment I’m still not sure what the plan is (for the record, I’ve been breastfeeding Sophie since day one and she’s now 7 weeks old). During my pregnancy we discussed if I could breastfeed, what medication was safe and at what point I would have to start immune suppressant drugs but my doctors never came to a consensus so no decision was ever articulated to me.
So I did what every patient should do: I educated myself and became my own advocate.
Of course, I’m motivated to do what is in the best interest of my daughter. Right now I’m on 20 mg of prednisone and 600 mg of gabapentin everyday, both safe (enough) for breastfeeding. The gamble is how long I can continue this practice before I have a relapse (if it’s going to happen). At what point do I stop breastfeeding and start immune suppressant drugs? Will it happen and if yes, when? If I stop breastfeeding too soon, am I robbing my daughter of necessary nutrients? If I continue for too long, am I playing with fire and putting my own health at risk?
It’ll be another month before I see my neurologist, at which point I’ll discuss and decide then. Even this one month makes me nervous now but I’m so busy with a newborn I don’t dwell on it.
Is there any other NMO patients out there who breastfed their kids?