Q&A with John: Reflections on NMO Love

John and I don’t really celebrate Valentine’s Day. Tonight, while couples flock to romantic restaurants across the nation, the hubster and I will be at the gym, making fun of each other for crying while lifting weights. In fact, sometimes I think he knew I was the one only after I’d said V-Day was a marketing ploy for American consumerism. But I digress…I will still try to keep this post on topic.

So, in an attempt to somewhat give nod to V-Day by reflecting on our relationship, I asked John a few questions.

Christine Ha: Who are you?
John Suh: I am a Korean-American, born and raised in Houston, Texas. Lover of technology and an entrepreneur enthusiast.

CH: What made you pursue the relationship with me despite knowing I had NMO and vision problems?
JS: The first time I met you, you had this charisma. I knew you were intelligent, very cute, and had great humor. I knew pursuing you, I would also be facing challenges that I’ve never had to deal with. I’ve never met anyone with vision impairment, so I never knew how to guide someone walking, eating, etc. But the more I got to know you, I knew that you were someone special. Even early on before all the Masterchef celebrity status, I told you that I knew there were big plans for you, that you were going to be something big!

CH: What does it mean to be married to someone with NMO? To be his/her caretaker?
JS: It means you need patience.

CH: What were some of the most difficult times you’ve had in the relationship when it came to NMO and vision impairment?
JS: Anytime you had an attack, I felt powerless. As a partner, you want to do whatever you can to help your significant other when they’re in trouble. When you had your NMO attacks, I felt lost. I admit that I questioned myself. Can I really be with someone that has health issues for the rest of my life?

CH: What do you enjoy about our marriage? Are there any silver linings to being married to someone with NMO and vision loss?
JS: No. only gold nuggets. I enjoy that we both love food.

CH: What do you wish you could change about your life with me?
JS: My one wish would be for us to have more time to travel and experience the world together.

CH: What are you most thankful for in your life with me?
JS: I am most thankful for having someone that’s so compatible with someone like me. People say that you’re like a puzzle piece looking for your counter part that fits you. And I imagine my puzzle piece to look jagged and rough but yet I’ve found my counter piece. I’m also thankful that we’re always learning from each other. Your always there to correct my grammar, and I’m always around to point out the metaphors in movies.

CH: Do you have any advice for people who know or love someone with NMO and/or vision loss?
JS: Just do it. Life is too short to miss out on the amazing journey you could be having. There will be ups and downs, but in between it all it’s all gravy. And I love gravy.

CH: What have the last 2 years been like with my leaving to tape “MasterChef” and then all that followed? What is it like to have a celebrity as a wife?
JS: Nothing has really changed for me personally. We definitely travel and get to experience things like taping shows, chef tastings, etc. Being with a celebrity has its perks.

CH: Any last words?
JS: Leave you with my favorite quote: “Some men see things as they are and ask why. Others dream things that never were and ask why not.” —George Bernard Shaw

***

Whether it be a spouse, partner, parent, child, sister, brother, friend, or pet, we hope you find your missing puzzle piece.

4 Comments

  1. Gwen Williams

    I hope my husband seeing at least one nugget.
    When you have been together for over 20 years and get a diagnosis it changes your future and even some of the past.
    Thanks for giving people with NMO another perspective.!

    Comment by Gwen Williams on February 15, 2014 at 7:48 pm

  2. Gwen Williams

    I hope my husband seeing at least one nugget.
    When you have been together for over 20 years and get a diagnosis it changes your future and even some of the past.
    Thanks for giving people with NMO another perspective.!

    Comment by Gwen Williams on February 15, 2014 at 10:11 pm

  3. patti lellock

    Beautiful. I am older, married with grown children and grandchildren. I don’t nor have ever asked – why me. I know I wouldn’t want it for anyone else. I feel blessed I was older when I was diagnosed and able to have that carefree young lifestyle. But when I learn of a young adult, a young child being diagnosed – that’s when I question. I would give up my life to save the young if I could. After reading this, I am having difficulty expressing my emotions, but by the end, I felt so much joy for both of you to have found each other among all the many people in the world. Thank you for sharing such a beautiful love story.

    Comment by patti lellock on February 16, 2014 at 9:48 pm

  4. kyte williams

    THAT IS TOO BEAUTIFUL!!!!!!!!!!!!!..

    Comment by kyte williams on November 26, 2014 at 6:29 pm

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