Help Take NMO to the Next Level: Complete This Clinical Trial Survey

I always reminisce about how the Guthy Jackson Charitable Foundation’s 2010 NMO Patient Day was the catalyst for the birth of NMO Diaries. That’s why I have a soft spot for GJCF and its mission to better the lives of those affected with Neuromyelitis Optica/NMO through advancement of therapies and search for a cure.

The latest project at GJCF is a clinical trial survey that will bring together people living with and blood-related to those with NMO into a pool of possible clinical trial candidates. Filling out the survey doesn’t automatically enroll you in a clinical trial; rather, it helps measure your knowledge of and willingness to participate in clinical trials.

I, myself, have enrolled in a few clinical trials before, and yes, it takes time and resources, but I participated because I have hope for the future generation that NMO can one day be a thing of the past, like polio! Whenever I have the time and qualifications, I make an effort to contribute whatever I can to better the lives of everyone affected by NMO, including myself.

Even if you aren’t sure, I encourage you to complete the GJCF clinical trial survey and be part of a movement to improve our lives.

2 Comments

  1. Laurie Marks

    Does anyone have any experience managing NMO with yoga?

    Comment by Laurie Marks on July 2, 2014 at 9:50 pm

  2. Jenna

    Hi Laurie,

    Yes actually, many of us use yoga to manage tight muscles, as part of physiotherapy after major or minor attacks and for strength training to offset the numbness. Like everything else, get your doctors approval and make sure you find a practitioner who has experience working with auto-immune patients.

    Comment by Jenna on July 4, 2014 at 1:15 am

Leave A Comment!