Despite NMO I have a 3 year old now!

 

 

 

This past weekend we celebrated Sophie’s 3rd birthday and yes, it was elaborate. In truth, I know I can get, um, well, a little overboard but I can explain.

 

Sophie’s birthday is technically the end of this month but as a “long weekend baby”, we’ll probably always celebrate it a week early with our family and friends. On her actual birthday we reserve the day for just the three of us as a family unit.

 

Sophie, like all other children, is a miracle. But to me, her day is very symbolic and extra special. Living with NMO (neuromyelitis optica) I was told having children was not going to happen. They said it was dangerous to come off my meds, reckless, not enough medical evidence, etc. To Mike and I, that was just more heartbreaking news. But I worked hard to get back to an acceptable health. And I did my homework about IVF. Then I begged and pleaded my team of doctors until they agreed, with significant warning, to let us give it a try.

 

And then there was the entire IVF process…that’s a whole other post.

 

But in the end, we beat this disease just a little bit because we have her, our miracle baby. And every year on her birthday I’m reminded of how grateful I was and still am for all the love and support from our family and friends and doctors and medical advancements, and (I can go on and on – this is such a long list).

 

And my heart breaks just a little bit more when I think of how NMO might rob me of time with her. This month has been tough knowing we’ve lost one of our big advocates, Candace Coffee, and how her twins are just a year younger than my little girl.

 

So yes, I throw a party. I take months ahead of time to plan intricate details around her theme (this year it was “Princess”) and we celebrate. For this I won’t apologize, be judged or scolded.

 

And as I watched her have an amazing time with her new school friends, dance class friends and family friends, my heart is filled with more happiness than I could have ever imagined. We beat NMO a little bit yesterday, today and if I have anything to say about it, for a really long time tomorrow too.

The royal princess table setting for 12 kids.

cwvDm9asA_Lw9YsGTQNy8vWzhk4

A special guest, Rapunzel, surprised the birthday girl with a visit.
cwvDm9asA3Lw9Ytmwbl5esmrAg

It wouldn’t be a party without a royal snack table.

18396_10152960304995824_3790636168663241778_n

Hummus carriage (with zebras because we couldn’t find small horses).
11800590_10152960305090824_5403362538295148193_n

Glam station for when the royal guests arrived.
11800082_10153490884689461_3377914030371776995_n

And special cupcakes with ring toppers that each guest brought home. 11745600_10153490885309461_5620079337406472899_n

The bouncy “castle” was a real hit. cwvDm9asA3Lw9ZNWAbl5esWzZw-1

Her royal highness, Princess Sophie, is now 3 years old.11753743_10152960304720824_6670494545840344038_n DSC07119 DSC06976

One Comment

  1. Happy Birthday Sophie. What a fun birthday party. You have a very special Mommy.

    Comment by Chris Kryshak on July 28, 2015 at 3:06 pm

Leave A Comment!