I know it’s a gripe that I share with most NMO patients – having to swallow a lot of pills several times a day. I organize my medication in a daily pill organizer. Because it has become part of my daily rituals, I find myself often second guessing if I even took them today. Being able to check my pill organizer answers that question.
My pill organizer is a generic drugstore purchase. It’s worn out with its ugly black lettering peeling off. My daily haul barely fits into each compartment. I tuck it into a drawer so I’m not reminded of my illness but also because medication should never be accessible to children.
Some nights I take my evening pills out and put them on my nightstand. I sit on the edge of the bed and mentally will myself to take them. Mike, my husband of almost 6 years but 10 years by my side, will reach over, rub my back and say, “I know”. It is moments like those that I am grateful for his endless support.
This week I have a horrible throat infection. Sophie passed a simple cold from school but in my body it has manifested into so much more. This morning’s pill set:
Cellcept – to suppress my immune system
Gabapentin – to suppress the spasms and numbness
Advils – to fight the inflammation in my throat
Penicillin – to fight the throat infection
Oxycodone – to manage the whole body pain from NMO
Omeprazole – to manage the acid reflux because of all the drugs
I know taking a lot of medication is exhausting and disheartening. On days I feel like I can manage this disease I still feel sick when I’m taking my pills. But Mike reminds me that taking pills is better than a relapse, better than not feeling good and better than carrying on with my life. He is, of course, right.