Putting the FUN in Fundraising!

swag

Volunteer swag

Yesterday was the 5th annual 5 km walk/run/roll for NMO at Rocky Point Park in Port Moody, BC, Canada. We could not have asked for a more beautiful day-the weather was perfect-sunny, but not too hot. (Given how much rain we’ve had over the last 6 months, this was a pretty big deal.)

volunters

Organizers and volunteers were up bright and early to set up at 7 am and opening remarks and the ceremonial ribbon cutting kicked off at 8:30 am.

opening

Opening Remarks

Speakers included race organizers, Nancy Reimer, Dr. Carruthers, who is part of the NMO program at UBC and Lisa McDaniels, an NMO mum who works with the Guthy-Jackson Foundation. All of them shared about the importance of the NMO walk/run/roll in raising money for much needed research.

afterrace

Post Race refreshments

After the race there were plenty of goodies to eat, massages and entertainment.

mll

Michelle Dean, Me & Lisa McDaniel

There was even time to catch up with friends who had traveled from the US to be with us. Thank you to everyone who participated, sponsored, donated and volunteered. We have such a supportive and generous community.

nancy

NMO Walk.Run Organizer, Nancy Reimer

Did you know that in the 5 years the NMO walk/run/roll has existed, together we have managed to raise over $100,000 for NMO research? That’s amazing! Thank you Nancy for all your hard work to make this possible. I hope you are having a much needed rest today!

See you next year!

12
Jun 2017
POSTED BY Lelainia Lloyd
DISCUSSION 2 Comments
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2 Comments

  1. Michaella

    Hi Lelania,

    my name is Michaella and I just want to say that it is wonderful and awesome that you are taking part in events like these to help raise a cure for NMO. I’m currently living with this condition and my journey to recovery was difficult and it was hard for me to accept this disease. I’ve been healthy all of my life and just about 3 months after turning 19, I started feeling my symptoms. After 5 long months of being in the dark about what I have, I got a diagnosis and was back on track to getting my life together. For a while, I felt alone, scared, and unwelcoming for what the future held for me. However, I knew I had two options, to be scared and not do anything about it, or fight hard to find ways to battle this disease. I don’t want to be frightened of what’s going to happen, I want to be able to help others fight through this. I don’t have a game plan yet, but when I do, I will have to let you ladies know. I definitely know that I want to be apart of the NMO walk. So any information you can provide me with would be great! Also, thank you for creating this website. I know reading the material has made me feel less alone in the world and I’m sure it is doing the same for others.

    Sincerely,

    Michaella Black

    Comment by Michaella on January 14, 2018 at 4:29 am

  2. Lelainia Lloyd

    Hi Michaella,
    You’re absolutely right-you can either live in fear or decide to keep moving forward. You get to decide how much room you are going to allow this disease to take up in your life. It’s an adjustment, but it IS possible to live with with NMO. I had my first symptoms at 12 but wasn’t diagnosed with anything till I was 37 and then they made the mistake of thinking I had MS. I did 5 years of MS treatments, only getting worse before they figured out 5 years ago I actually had NMO. I am sorry you’ve been hit with this at such a young age. My hope is that by identifying it early, you will have better treatment and be able to stay ahead of the disease.

    The NMO walk is in Port Moody, BC, Canada usually in June. To keep up to date, I recommend following along at http://www.nomorenmo.com/

    Hang in there! Lelainia

    Comment by Lelainia Lloyd on January 14, 2018 at 9:33 pm

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